This past Thursday afternoon, my classmates and I were hunched over our desks, diligently taking a test, when out of nowhere the electricity in the building we were in shut off. The sudden blackness (this classroom had no windows) startled us; the muscles in my body flinched and I almost lost…
Shane Burcaw’s condition may kill him some day. But until then, he’s enjoying the hell out of life—and encouraging everyone else to follow suit
Men’s Health did a story on LAMN and Shannon and I!
By far, my favorite part of the speaking tour was the genuinely interested and thankful responses from kids who came to our speeches. One kid told me that hearing my story made him want to share his story with his family because they don’t know all the problems he faces. He might have been 13. Incredible.
I guess it was stupid of me to think we might get some down time after the speaking tour.
Shannon and I have a phone interview with the Today show this afternoon. Then my dad and Shannon and I are being picked up tonight to go spend a few days in New York City because Katie Couric got wind of our roadtrip adventure and wants us to be on her show to talk about it!
It’s all happening!! So proud of you guys!! Keep it up.
It was an all around beautiful day spent with my friends on the roadtrip, except when I tried drinking straight rum and went into a coma for two days.
Just kidding. No coma.
Happy 21st to this guy. Happy birthday Shane. You are the coolest dude I kinda know. :)
We have five days left to reach our fundraising goal! If all of you donated $1, we would reach our goal seven times over. Probably 20 times over if you also shared on your networks! I promise this documentary will be the funniest thing you have ever seen.
reddit: the front page of the internet
For the last two years, 20-year-old Shane Burcaw has shared his tales of life with spinal muscular atrophy on the wildly popular Tumblr called Laughing at My Nightmare. Now he’s writing a memoir, which he just sold to Macmillan.
I had to keep this a secret for a long time, but today I can finally officially announce that I have a book deal! Honestly, this is one of the most exciting things to ever happen to me!
I’m excited to officially announce that I will be departing on an East Coast speaking tour from May 24th-29th with my brother, and two of my best friends, Shannon and Andy (who work for LAMN, Inc.)! The four of us will be driving from Pennsylvania to Florida and back again, making stops along the…