Last night I posted a joke about having strangers help me pick boogers in public, as I’ve lost the physical ability to reach my own nose over the last few months.
This morning, I have an itch on the bridge of my nose, right between my eyes. It’s the kind of dry, peeling skin, sunburn itch that…
Please don’t scroll past this. Shane I want to hug you. Not because I think you need a hug, but because I think I do. xo.
Asked by Anonymous
Every morning I gently insert three triple-A batteries into my anus while drinking a glass of warm orange juice. The acid from the juice demagnetizes the batteries in my intestine and causes them to emit a powerful, yet completely safe, flow of positive energy into my blood stream.
I also make an effort to focus on things I can control, and choose not to let little annoyances get in the way of the awesomeness that is being alive. I’m not perfect. I’m not always positive. Yesterday I got upset that my arms were feeling particularly tired, but I let myself be sad for a bit, and then moved on by reminding myself that being sad about weak arms won’t make them any stronger.
This is what it means to have a great attitude and to influence others to have one as well.
This past Thursday afternoon, my classmates and I were hunched over our desks, diligently taking a test, when out of nowhere the electricity in the building we were in shut off. The sudden blackness (this classroom had no windows) startled us; the muscles in my body flinched and I almost lost…
Shane Burcaw’s condition may kill him some day. But until then, he’s enjoying the hell out of life—and encouraging everyone else to follow suit
Men’s Health did a story on LAMN and Shannon and I!
By far, my favorite part of the speaking tour was the genuinely interested and thankful responses from kids who came to our speeches. One kid told me that hearing my story made him want to share his story with his family because they don’t know all the problems he faces. He might have been 13. Incredible.
I guess it was stupid of me to think we might get some down time after the speaking tour.
Shannon and I have a phone interview with the Today show this afternoon. Then my dad and Shannon and I are being picked up tonight to go spend a few days in New York City because Katie Couric got wind of our roadtrip adventure and wants us to be on her show to talk about it!
It’s all happening!! So proud of you guys!! Keep it up.
It was an all around beautiful day spent with my friends on the roadtrip, except when I tried drinking straight rum and went into a coma for two days.
Just kidding. No coma.
Happy 21st to this guy. Happy birthday Shane. You are the coolest dude I kinda know. :)
We have five days left to reach our fundraising goal! If all of you donated $1, we would reach our goal seven times over. Probably 20 times over if you also shared on your networks! I promise this documentary will be the funniest thing you have ever seen.
reddit: the front page of the internet
For the last two years, 20-year-old Shane Burcaw has shared his tales of life with spinal muscular atrophy on the wildly popular Tumblr called Laughing at My Nightmare. Now he’s writing a memoir, which he just sold to Macmillan.
I had to keep this a secret for a long time, but today I can finally officially announce that I have a book deal! Honestly, this is one of the most exciting things to ever happen to me!